Last week I, along with most of the CAC staff, had the privilege of attending the virtual launch of the LGBT Cancer Network’s newest research on the experiences of BIPOC cancer patients and survivors (read the full research here). The event featured Queer BIPOC survivors having an open and honest conversation covering a wide range of issues they face from diagnosis, treatment, and survivorship. As a gay man myself, it was energizing to see these topics being discussed so openly, in ways I’ve never seen (the effects of anal cancer on a survivor’s sex life, and the stigma around discussing it, for example). In spite of major advances in Queer legal rights and representation in the media in the last decade or two, we still live in the margins of society. Our needs are often neglected, in the workplace and in medical environments. These systemic shortcomings are only elevated for Queer members of BIPOC communities. This research brings to light challenges that could be changed with some awareness and training.

We talk a lot here at Cancer and Careers about disclosure. Deciding whether or not to disclose your diagnosis to your employer is one of many tough decisions faced in a cancer experience. The decision to disclose your LGBTQIA+ identity is just as complicated, and unfortunately has the potential to get in the way of your health care experience when a health care provider (HCP) holds biases (either consciously or subconsciously). One-in-four Black respondents stated they did not disclose their Queer identity to their doctors. Furthermore the study states, “One in ten BIPOC respondents described their notification of cancer diagnosis as disrespectful often due to a lack of compassion or follow-up care after diagnosis.” These feelings were even higher for those who identify as multi-racial. And those who identify as Latinx showed barriers by reporting they are significantly less likely to receive recommended screenings prior to their cancer diagnosis. To help with this, the study itself offers tips for HCPs to make their patients feel welcome and accepted (i.e. ask about pronouns, include LGBTQIA+ in a posted non-discrimination statement, don’t make assumptions). But even more helpful, they provide Cultural Competency trainings for HCPs. These trainings will make the healthcare field a more inclusive and safe space for Queer BIPOC patients in the future.

The National LGBT Cancer Network has a wealth of additional resources for patients, survivors and HCPs. These include a wider study on LGBTQIA+ cancer patients and survivors released in 2021, a directory of Queer friendly health care providers across the country, peer support groups that create safe spaces for Queer patients and survivors to share their experiences with people within their own community, and tons of great writing on navigating a cancer diagnosis/treatment/survivorship focused on those who identify as LGBTQIA+. We are so glad to have an organization like this filling in neglected gaps in the cancer care community.